Adnkronos Rome, 14 Nov. (Adnkronos Salute) – The streaming event of the campaign 'A promise for research', promoted by Aisla, the Italian Amyotrophic Lateral Sclerosis Association, scheduled for Thursday 21 November, marks the start of the Christmas fundraiser to support scientific research in the fight against Amyotrophic Lateral Sclerosis (ALS). The event will be broadcast live on YouTube and the association's social media channels from 19:22 p.m. to XNUMX:XNUMX p.m., allowing viewers to interact and comment. The program, full of speeches and testimonials that will focus on the strength of a shared commitment, will be kicked off by the national president of Aisla, Fulvia Massimelli. The evening, which will feature sports and entertainment personalities, along with journalists, clinicians and institutional representatives, will be hosted by Fabio Insenga, deputy director of Adnkronos, and Davide Briosi, radio speaker for Radio Bresciasette.
Always at the side of the association - explains a note - the world of sport sees the participation of presidents Giovanni Malagò (Coni), Luca Pancalli (Italian Paralympic Committee) and Giuseppe Gravina (Figc. In the Aisla team once again great champions respond 'present': Gigi Buffon, Giorgio Chiellini, Massimo Mauro, Mara Navarria, Ilaria d'Amico, Benedetta Signorini, Fabio Lucioni and also Luca Leoni, representing the fans. The story of Luca, a person with ALS, tells a story of the heart, or rather, of the black and blue heart of the InterNati community, united by the 'same extreme passion', as they define it, and which the journalist Filippo Conticello will tell. True athletes, as we know, always go beyond what seems possible. This is the appeal of the Association for the evening of November 21, reminding us of a motto dear to the Italian ALS community: the cure is there, we just have to discover it.
Art and entertainment will also have a leading role, thanks to an incredible artist who has always been alongside the association, Tenco Prize 2023: the singer-songwriter Ron who has been Aisla's testimonial for over 10 years. "His music is one of the best soundtracks of our lives, it colors it and sometimes punctuates it", underlines President Massimelli. There will be no shortage of surprises and emotions, including the special one of Neri Marcorè and the much-loved Francesco Renga, with his powerful voice and his ability to excite, and the Le Coliche brothers, with their creativity and originality that make them unique in their genre.
Taking stock of Science, at 20 pm, will be the president of the AISLA Medical Scientific Commission, Professor Mario Sabatelli and Doctor Riccardo Zuccarino, respectively clinical directors of the Nemo Centers in Rome and Trento, who will talk with Professor Giuseppe Limongelli, director of the coordination of rare diseases of the Campania Region but also member of the National Committee for rare diseases of the Ministry of Health and scientific director of the Nemo center in Naples, and with Lucia Monaco, president of AriSla, the Italian Foundation for research on ALS. Also invited is Tammy More, CEO of the ALS Society of Canada which will host the World Symposium on ALS in Montreal in early December.
The evening features a program full of testimonials and prestigious guests. Among them, Davide Rafanelli, President of SlaFood, national councilor of Aisla and a person with ALS who will share his experience. Davide defines ALS as a 'thief of taste'. Dysphagia is a problem that affects not only the ALS community, but also about 10-15% of the Italian population, reaching as much as 60% among the elderly. It will be discussed in the special in-depth program at 20:30 pm, hosted by Andrea and Michele of Radio Deejay with Professor Giorgio Calabrese, nutritionist and member of the Medical-scientific commission of Aisla.
At 20.45:21.30 pm, Maria Teresa Bellucci, Deputy Minister of Social Policies, together with Vanessa Pelucchi, spokesperson for the National Third Sector Forum, Elena Lucchini, Councilor for Family, Social Solidarity, Disability and Equal Opportunities for the Lombardy Region, will meet with Pina Esposito and Paola Rizzitano, respectively Secretary and National Councilor of Aisla. On the topic of very serious disabilities, such as ALS, there will be discussions to address the challenges of social and health policies, starting from the territories, to reach families. Finally, at XNUMX:XNUMX pm, there will be a talk on the narration of the disease. Authoritative journalists such as Francesco Ognibene, Nunzia Vallini, Stefano Arduini, Elena Meli and Claudio Arrigoni will contribute to this important discussion, who have a deep knowledge of the stories of people and families who experience the disease, as well as those of clinicians and researchers. 'A promise for research' is an event that goes beyond simple words. It is the journey of an evening among friends, touching testimonies and significant insights to remind us that each of us, even with just a promise, can become the decisive protagonist in the treatment and fight against ALS.
