Adnkronos (Adnkronos) – Kotahi anake i roto i te toru o ngā tāngata e pāngia ana e te mate pukupuku myeloid mau tonu (CML) e tino pai ana ki te pātai i ā rātou pātai ki te tākuta toto. Hei tāpiri, e whā i roto i te tekau o ngā tūroro e kore e tino whai wāhi ki ngā whakataunga maimoatanga, ā, e 30% anake e aroturuki ana i ngā huringa e pā ana ki te mate. Ko ēnei kitenga, mai i tētahi rangahau mō ngā hiahia whakawhitiwhiti kōrero a te hunga e ora ana me te mate, i whakahaerehia e Elma Research me te tautokona e Novartis Italia, e whakaatu ana i te kaha tonu o te whakamana i ngā tūroro hei wero.
Neke atu i te 30 tau o te wheako i roto i te mara o te toto, ka whakahoutia e Novartis tana whakapau kaha ki te whakaaro hou ki te CML, me te whai wāhi ki te ahunga whakamua o te pūtaiao me te whakatairanga i tētahi huarahi e whakauru ana i ngā whāinga haumanu, te kounga o te oranga, me te whai wāhi mai o te tūroro. E ai ki tana kaupapa ki te whakaaro hou ki te rongoā, ka mahi tahi te kamupene rongoā me ngā tohunga hauora, ngā whakahaere tūroro, me ētahi atu kaipupuri hea i roto i te pūnaha hauora ki te whakawhanake i ngā kaupapa me ngā taputapu e hāngai ana ki ngā hiahia o te hunga e ora ana me te mate.
I tua atu i ngā wero o te mōhiohio ki ngā tūroro me te whai wāhi kaha, ka puta anō hoki te pānga o te mate me te maimoatanga ki te oranga o ia rā. I whakahaerehia he rangahau ā-motu tuarua mō ngā hiahia kāore anō kia tutuki me te pānga ki te kounga o te oranga i roto i te CML, mā roto i ngā Putanga i Pūrongotia e te Tūroro (PROS), i tūhuratia ngā wheako tinana, hinengaro, me ngā kare ā-roto o ēnei tāngata: 73% o ngā kaiuru i kōrero mō te ngenge mau tonu, 65% te ngenge, te ngoikore rānei, me te 59% te mamae uaua.
Ina huihuia, e ai ki te kōrero, e whakaatu ana ngā rangahau e rua i ngā āhuatanga rerekē engari he tata te hononga o te CML: te kaha o ngā tūroro ki te mārama, ki te aroturuki, me te whakahaere i te mate, ā, i te wa ano, te pānga tonu ki ō rātou oranga o ia rā. Ko te CML te take o te 15-20% o ngā mate toto toto, ā, i Itari he 1-2 ngā keehi hou mō ia 100,000 tāngata ia tau. Ko te nuinga o te wā ka pā ki te pakeketanga me ngā kaumātua, ā, i ngā whenua o te Hauāuru, ko te tau waenga i te wā i kitea ai he 57 tau te pakeke.
Ko te āheinga o te noho tahi me te mate mō te wā roa ka whakaatu i te pumau o te mahere maimoatanga, tōna manawanui, me ngā āhuatanga e pā ana ki te oranga o ia rā. "I ēnei rā, ka inehia te whai huatanga o te CML i roto i te wā, arā, mā te whakatutuki me te pupuri i te urupare e tika ana, me te pupuri i te putanga rongoā mō te wā roa," te whakamārama a Elisabetta Abruzzese, he tohunga toto, Hōhipera Sant'Eugenio, Te Whare Wānanga o Roma Tor Vergata, Mana Hauora ā-Rohe Roma 2. "I roto i tētahi mate ka pā ki te tangata mō ngā tau maha, ko te manawanui ki te maimoatanga me ngā pānga taha ka noho hei wāhanga matua o te whakahaere haumanu. Ko te whāinga he pupuri i te whakahaere mate mā te mahere maimoatanga ka taea te whai i roto i te wā, ā, ka urutau ki te āhua haumanu, engari ki ngā hiahia, ngā kaupapa matua, me ngā whāinga oranga o te tūroro, ka taea te huri i ngā wāhanga rerekē o te oranga."
Ka whai wāhi ngā Hua Pūrongo a te Tūroro (PRO) ki te ine i te kounga o te oranga. Koinei ngā mōhiohio mō ngā tohu, te mahi, me te āhua hauora i pūrongohia tika mai e te hunga e ora ana me te mate. E whakaatu ana te rangahau mō ngā hiahia kāore i tutuki me te pānga ki te kounga o te oranga i roto i te CML e tata ana ki te 26% o ngā tūroro e arotake ana i tō rātou kounga oranga ki te kino, me te pānga nui ake i roto i ngā huarahi maimoatanga matatau. Mā ngā PRO ka taea te tautuhi me te whakauru i ēnei āhuatanga ki te aromatawai haumanu, ka whai wāhi ki te tiaki tūroro whānui ake.
"Ehara te kōrero a te tūroro i te tāpiri kōrero hei tāpiri atu ki te haerenga: he puna mōhiohio haumanu," te whakanui a Carmen Fava, he tohunga toto, Hōhipera Mauriziano o Turin, Te Whare Wānanga o Turin. "Hei whakaatu i tēnei, kāore e ranea te pātai whānui, 'Kei te pēhea koe?'. Mā ngā pātai tuturu mō te āhua hauora, tae atu ki te ngenge, te kounga o te moe, te mamae, ngā mahi o ia rā, me te āhua o te kare ā-roto, me ngā taputapu hanganga pērā i te Pros, ka āwhina i te hono i te wheako o te tūroro ki ngā raraunga haumanu. Ka taea e ēnei mōhiohio te tautoko i te tohutohu, te whai muri, me te, ina tika, te aromatawai anō i te mahere maimoatanga. Kāore e whakakapi i te whakatau a te tākuta, engari ka whānui ake te kōrero me te hangai ake o ngā kōwhiringa ki te āhuatanga tūturu." Ka taea e te kohinga wheako hanganga te āwhina i te aukati i te ngaronga o ngā mōhiohio e tika ana i waenga i ngā haerenga. Koinei te wāhi e uru mai ai te Vita Lmc Tracker, he taputapu matihiko e whakatairangahia ana e Novartis Italia hei āwhina i te hunga e noho ana me te CML ki te aroturuki i ō rātou tohu, te kounga o te oranga, me ētahi atu āhuatanga o tō rātou oranga o ia rā i roto i te wā. Ka taea e te taputapu te āwhina i te tangata ki te kite i ngā huringa, ki te whakarite i ngā mōhiohio me te whakarite mō te kōrero ki te tohunga.
"Ko te whai wāhi kaha ki tāu ake maimoatanga ehara i te mea ko te whakakapi i tō tākuta, ko te whakatau takitahi rānei, engari ko te whakatata atu ki te kōrero me ngā pātai, ngā kaupapa matua, me ngā tumanakohanga ka taea te mārama me te whakaaro," te kī a Felice Bombaci, te kaiwhakahaere ā-motu o te Rōpū Tūroro CML o AIL – te Rōpū Itari ki te whawhai ki te Leukemia, Lymphoma, me te Myeloma. "Ka āwhina ngā rōpū ki te whakatere i ngā puna, ki te tuku mōhiohio whai mana me te kōrero tahi, ki te whakarite i te tangata mō te wā whakarite, me te āwhina i a rātou ki te mōhio he aha te mea e tika ana kia kōrerohia. He piriti rātou ki te whanaungatanga ki te tohunga toto, ehara i te mea kē atu. Ka taea e te tangata kua rite ake te pātai i ngā pātai motuhake ake me te whai wāhi atu ki tā rātou haerenga maimoatanga me te mōhio nui ake." Ko te CML "tētahi o ngā tauira tino nui o te whanaketanga pūtaiao kua huri i te whakahaere i tētahi mate toto," te kī a Marco Rago, te Tumuaki Hauora o te Oncology i Novartis Itari. "I ēnei rā, ko te haere tonu ko te mārama ki ngā matea e whanake haere ana o te hunga e noho tahi ana me te mate mō ngā wā roa. Mā te Vita CML Tracker, e hiahia ana mātou ki te whakatairanga i tētahi kohinga wheako o ia rā kua whakaritea ake, me tētahi kōrero whānui ake ki ngā tākuta, me te whakapono ka taea e ngā rangahau, ngā tohunga hauora, me ngā rōpū te mahi tahi ki te tautoko i te whai wāhi nui haere ki te tukanga maimoatanga."
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